Never doubt that a small group of thoughtful committed people can change the world. Indeed it is the only thing that ever has- Margaret Mead
A New Frontier for Endometriosis
When Dr. Sallie Sarrel, a person with endometriosis and a pelvic physical therapist specializing in endometriosis, and Dr. Andrea Vidali, an endometriosis surgeon with more than 25+ years of experience with excision of endometriosis and reproductive immunology, got fed up with the current state of endometriosis care the result was The Endometriosis Summit.
The Endometriosis Summit has three core beliefs:
1. No one should suffer from pain due to lack of access to care or lack of education on endometriosis and all of its associated pain conditions.
2. The average diagnostic delay of 8-10 years for people with endometriosis is too long. It is time for accurate, unbiased information and research about endometriosis to be disseminated everywhere. The standard of care for endometriosis care needs to change. Endometriosis care must include excision of the disease at its root with a multi-specialist team if needed, and multi-disciplinary care like pelvic physical therapy and nutritional therapy. Pelvic Pain is multi-faceted and takes a multi-faceted approach. A hysterectomy does not cure endometriosis. Minimizing and gaslighting people with pelvic pain is no longer acceptable. Very real physical concerns deserve very real physical answers. Insurance coding needs to be amended to reflect the complexity of endometriosis care and help to further endometriosis education for patient and practitioner.
3. Endometriosis and Pelvic Pain care must be inclusive to everyone regardless of age, race, sexual orientation, gender, or socioeconomic status. Respecting the patient includes respecting their fertility choices, desire to live a healthy and active life, and committing to being on the journey of wellness together in the therapeutic relationship.
The time to unite is here. Everyone affected by endometriosis, more than 200 million worldwide and everyone who surrounds that 200 million, has a voice. Together let's stop the minimization, myths, and misinformation to change endometriosis for everyone. The Endometriosis Summit's Annual Town Meeting joins patients and practitioners on even footing to learn from each other without facades.
The Endometriosis Summit has three core beliefs:
1. No one should suffer from pain due to lack of access to care or lack of education on endometriosis and all of its associated pain conditions.
2. The average diagnostic delay of 8-10 years for people with endometriosis is too long. It is time for accurate, unbiased information and research about endometriosis to be disseminated everywhere. The standard of care for endometriosis care needs to change. Endometriosis care must include excision of the disease at its root with a multi-specialist team if needed, and multi-disciplinary care like pelvic physical therapy and nutritional therapy. Pelvic Pain is multi-faceted and takes a multi-faceted approach. A hysterectomy does not cure endometriosis. Minimizing and gaslighting people with pelvic pain is no longer acceptable. Very real physical concerns deserve very real physical answers. Insurance coding needs to be amended to reflect the complexity of endometriosis care and help to further endometriosis education for patient and practitioner.
3. Endometriosis and Pelvic Pain care must be inclusive to everyone regardless of age, race, sexual orientation, gender, or socioeconomic status. Respecting the patient includes respecting their fertility choices, desire to live a healthy and active life, and committing to being on the journey of wellness together in the therapeutic relationship.
The time to unite is here. Everyone affected by endometriosis, more than 200 million worldwide and everyone who surrounds that 200 million, has a voice. Together let's stop the minimization, myths, and misinformation to change endometriosis for everyone. The Endometriosis Summit's Annual Town Meeting joins patients and practitioners on even footing to learn from each other without facades.
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Change the Narrative Register for our 2020 ConferenceBe sure to purchase soon, tickets are almost sold out!
Come and be heard. The Endometriosis Summit hosts a Patient & Practitioner Town Meeting. Patients and practitioners band together, learning and sharing with each other, without the veil of bias, to initiate change in endometriosis.
The first Endo Summit started the conversation. Now, let's return to Hoboken, New Jersey and push the envelope further. On March 1, 2020 Endometriosis Awareness Month kicks off with a jam packed day of thought provoking panel discussions, audience participation in our Town Meeting style event, and plenty of challenges to the status quo of endometriosis. February 29, 2020 everyone can leap into advocacy at our brand new Endometriosis Summit Workshop. At the Endometriosis Summit Workshop explore topics related to endometriosis in a unique, cozy setting. It will be an opportunity for education, exploration, and self efficacy. Every Nurse attending Endometriosis Summit Workshop will receive a School Nurse Initiative toolkit from EndoWhat.org which serves as an endometriosis education toolkit. The toolkit also contains CEU's from Northeastern University School Health Academy that are available for a small fee. Endometriosis Summit has also partnered with The Menstruation Collective (@themenstruationcollective) for our Town Meeting 2020. Any clean menstrual supplies will be donated to those in period poverty in border towns. Bring Period Products to Donate! |
Learn More About Endometriosis
Endometriosis Education and Helpful Links
Endometriosis is a painful and debilitating condition that includes much more than painful periods. Symptoms may include bladder problems, IBS like symptoms, bloating, painful sex, pelvic pain, infertility, menstrual issues, back pain, and fatigue. Some useful links on endometriosis: Endometriosis Patient Library(Center for Endometriosis Care) Take Action (EndoWhat.Org) Preventing Miscarriage Find Support Nancy's Nook for Endometriosis Care Why Hysterectomies Don't Work Be Prepared |
Sponsorships and Speaking
The Endometriosis Summit in 2019 had over 300 in attendance and thanks to our Platinum Sponsor, Lumenis, close to another 70,000 viewing online. In addition to our yearly conference we have projects and partnerships planned that include more live events, hands on educational materials, a book series, and care donations to help people with endometriosis access care. Both Dr. Vidali and Dr. Sallie are available to speak either on treating endometriosis or on the vital role patient advocacy plays in endometriosis. We have sponsorships available for our conference, our gift bags, and many of our projects. We look forward to hearing from you. |
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