Casey Berna who has a master's degree in Social Work, has been a voice in endometriosis advocacy for many years. She has lectured at international conferences on endometriosis, anxiety, and the trauma of pelvic pain. After her own battles with endometriosis Casey heads the fight against ACOG for better standards of care for endometriosis. She teaches the world that as people with endometriosis, we matter. She writes:
What Doctors Say
They said I was in pain because I had a low pain tolerance, had an STD, irritable bowel syndrome, sexual abuse history, anxiety, depression.
They said I was in pain because I didn’t eat healthy, didn’t exercise, had gained too much weight, or didn’t weigh enough.
They said I couldn’t have endometriosis because I was a too young, too old, a trans man, too fertile, or a black woman who was just naturally inclined to have painful periods.
They said I couldn’t have endometriosis because I was pregnant, didn’t have a uterus, was on birth control, already had surgery.
They said I needed to focus on finding a partner, getting pregnant, freezing eggs, going through fertility treatments.
They said they could put me on hormones, burn some of the disease away “if that’s what I really wanted,” put me on stronger hormones that mimicked menopause, give me a hysterectomy.
They said they couldn’t touch the disease on my bowel, or other “hard to operate” areas, or refer me to anyone that could.
They said they couldn’t give me pain medicine, couldn’t do more surgery, couldn’t do anything else.
What Doctors Fail to Say
They didn’t say it could be endometriosis, something that 1 in 10 people born with female reproductive parts have.
They didn’t say how endometriosis is a disease that impacts multiple body systems, not just reproductive parts, and how my symptoms suggested that this disease could be implicating multiple organs.
They didn’t say a hysterectomy wasn’t a cure.
They didn’t say that pregnancy wasn’t a cure, that it is a lifelong condition, especially without proper multidisciplinary care.
They failed to mention that the majority of endometriosis doesn’t show up on scans or diagnostic tests, and that negative results do not mean that I am “fine”.
They failed to mention that hormones were palliative treatments and only masked symptoms and couldn’t prevent or diminish the disease itself.
They failed to mention how harsher hormone treatments, that induced menopause, could have lasting, serious side effects with only possible beneficial short term symptom relief.
They failed to mention there was a safety limit to being on these harsh menopause inducing drugs and kept me on them for years.
They withheld if they or the non-profits they support, took money from the drug companies who made the drugs they prescribed.
They withheld if their affiliated hospitals took money from the drug companies who made the drugs they prescribed.
They withheld if the drug companies sponsored their research, or if the drug companies sponsored the journals they published in.
They withheld that the drug companies sponsor their professional organizations that advise the treatment plans or standards of care that they follow, standards that are supported by research that is paid for by drug companies, by researchers that are paid drug company consultants, affiliated with hospitals that are sponsored by drug companies, and published in journals that take money from drug companies.
They withheld that drug companies essentially pay multiple entities on multiple fronts to make sure that prescribing their products are included in endometriosis standards of care.
They withheld that unless they did a fellowship with an endometriosis surgical expert, they are not qualified to treat a very complex, multifaceted disease.
They made me feel inadequate, when they were inadequate. They compromised my body, by being compromised.
All in what they said, and did not say.
We will gather at The Endometriosis Summit as patients and practitioners. We will say what needs to be said. Together we will move endometriosis forward.
In 2019 Casey facilitated Minimize the Minimization: What did you just say to me? -an interactive experience on the profound impact of well meaning but uninformed providers at the Endometriosis Summit.
Tickets are on sale www.theendometriosissummit.com
Michela is a teen endometriosis advocate. The Endometriosis Summit will be a Town Meeting of both practitioners and patients. This allows us to hold space for the voices of endometriosis. She writes:
If I asked you about endometriosis what could you tell me?
Having a chronic illness is difficult; emotionally and physically. You have to preserve through your day and through challenges that many other people do not face. School, sports, and even hanging out with your friends can be difficult- this is what I have to live with on a daily basis.
At only 16, my endometriosis has taught me many things: not to be ashamed, advocate for what I need, and for others when they are struggling. We will have no hope in changing this disease if we don’t teach and support everyone that is struggling.
When I was younger, I would hide. I would hide my pain, my diagnosis, my anxiety. Hiding was a mistake. As I got older, I realized that endo was a part of me, something that I would have to live with, so I might as well embrace it. Pain does not mean you are “too delicate”. The strongest women I know, including my mother and my “aunties” all have endometriosis and are all incredibly strong. Having endometriosis does not mean you are weak.
I had to learn this myself. I learned that advocating for your self is the most important thing to do. No one lives your life, therefore no one knows what it is like to be you. Sometimes advocating for your self is difficult. Many times, you may get rude or hurtful comments, such as “she’s over exaggerating” or “it’s all in your head.” This is what makes advocating for your self tough. When I hear comments such as these by those who are supposed to help me, I feel helpless, and sometimes even begin to believe the comments. Experience has taught me not to. I know my truth and as you advocate for yourself with this disease, so will you.
It took me a long time to tune out the noise from others. Now, advocating for other teenagers is super important to me. Sometimes people need help. I want to be that person that hears and helps them. Teens with endo live really difficult lives, and I know this because I live it too. Your friends may not understand, teachers may think less of you, and doctors may think you’re faking it. Don’t worry, I believe you and understand you.
Endo is a part of me, but it does not define me. My hope is to one day make a difference and be apart of finding a cure for this awful disease.
The Endometriosis Summit is a place for people with endometriosis of all ages to learn and be heard. Tickets are on sale at www.theendometriosissummit.com
Nancy Petersen or Nurse Nancy started the first LAPEX program in the nation with David Redwine in Bend Oregon in 1985. The clinic quickly developed into an international patient base. While she is retired now, her pervasive voice in endometriosis is never quiet. She teaches online in Nancy’s Nook for Endometriosis Care on Facebook. It is a board of 70,000+ members –all seeking better care for their endometriosis having failed all gynecology has to offer except expert excision of disease. Nancy's vision of educating the person with endometriosis drives the Endometriosis Summit forward but she will not be present in Hoboken in New Jersey in March. However, it is her mission to educate patients that is part of our inspiration for the event. She writes:
For the first time in years, I think the darkness is beginning to dissipate with regards to endometriosis. This is made possible by committed physicians who have educated themselves and discovered that suffering does not have to continue. Physicians, in particular endometriosis excision specialists, have come to understand the suffering is real. They are now sharing that with others. The validation this brings to the people with endometriosis cannot be underestimated.
Years of being disbelieved has left a sad imprint on these patients. Peritoneal quality pain is very difficult with which to cope alone. Quality Excision Specialists bring hope that relief is in sight. But, it is time to make excision accessible to all with better standards of care and with better training. The programs available to train surgeons, not only minimally invasive surgery skills, but the key components of the true picture of endometriosis are turning the tide. People with endometriosis deserve no less, and it needs to be more widely available.
I am reminded of two female pioneer’s inspiring words as I continue my work in the Nook. First, Margaret Mead PHD Cultural Anthropologist 1904-1978 said, “Never doubt that a small group of thoughtful committed people can change the world. Indeed it is the only thing that ever has”. This is so true as the voice of the people with the disease and the advocates continue to speak up and speak out to incur change in endometriosis. The Endometriosis Summit will showcase the importance of the patient’s voice.
Second, when asked why simple changes took so long to take effect,
Sister Kenny an Australian nurse who changed the course of rehabilitation of polio patients world wide replied: “When we speak with the voice of authority, we come to believe we are the authority”.
At The Endometriosis Summit and beyond it is the voice of the people with the disease and the practitioners that toil so hard to treat properly that will change our future.
Tickets for The Endometriosis Summit on sale: www.theendometriosissummit.com
Dr Allyson Shrikhande is a pioneer in the field of Pelvic Physiatry. She is Internationally known for her amazing work and compassion for people with pelvic pain. She owns Pelvic Pain Rehabilitation which has offices in New York and at Care Point Health in New Jersey. Dr. Shrikhande is a crucial team member to anyone with endometriosis. She writes:
As a physiatrist specializing in pelvic pain, I focus on the muscles, nerves and joints of the pelvis. I have a special place in my heart for my endometriosis patients, and raising awareness and helping to improve the quality of life of these patients is my life’s passion. A large percentage of my patients have known or suspected Endometriosis. Unfortunately, at this point in time the only way to diagnose and definitively treat endometriosis is through surgery. Most patients have suffered for a long time and seen several physicians before understanding why they are having severe bloating, abdominal and pelvic cramping, constipation, pain with tampon insertion or intercourse just to name a few.
When treating patients with Endometriosis, I am looking to identify and help treat potential pain generators other than the Endometriosis itself. I break these “other” potential pain generators in to three categories; the central nervous system, peripheral nervous system and musculoskeletal system. It is important to treat all three for a patient’s body to reach a state of internal balance.
Over time, the presence of Endometriosis causes an inflammatory soup which can irritate and eventually upregulate the peripheral nerves of the pelvis. The upregulation of the peripheral nerves sends signals to the spinal cord and brain, which then upregulates the central nervous system. This is what we call peripheral and central sensitization. In helping patients, we focus on treating these with a combination of peripherally targeted therapies such as pelvic floor physical therapy with nerve gliding techniques, nerve blocks and centrally targeted therapies such as meditation, diaphragmatic breathing, acupuncture and in certain cases mindfulness based cognitive behavioral therapy and central nervous system neuromodulating medications.
When looking at the musculoskeletal system, it is important to rule out other potential pain generators such as an inguinal hernia, umbilical hernia, obturator hernia, sports hernia, hip or lumbar spine pathology, sacro-iliac joint or pubic symphysis pathology. These can all contribute to pelvic pain and can occur concomitantly with Endometriosis. (Dr. Marc Zoland will present on hernias at The Endometriosis Summit and Dr Amy Stein, PT DPT will present on musculoskeletal causes.)
Lastly, a large percentage of patients with pelvic pain have short, contracted, weak and tender pelvic floor muscles. I help identify and treat these hypertonic pelvic floor muscles, which if persist can cause pelvic pain even after the endometriosis is surgically removed.
I truly enjoy treating and getting to know endometriosis patients and helping them regain the quality of life that they deserve.
Come here Dr. Allyson Shrikhande and Pelvic Pain Rehabilitation's Medical Partner Tayyaba Ahmed at The Endometriosis Summit. Tickets on sale www.theendometriosissummit.com
Dr. Iris Orbuch joins The Endometriosis Summit Speakers blog series. Dr. Iris Orbuch specializes in the Treatment of Endometriosis. Dr Orbuch specializes in pelvic pain and the treatment of endometriosis. She understands that endometriosis is a major reason women experience pain, though she strives to assess for all additional co-existing generators of pain in order to help women live pain free productive lives. Her and her husband Dr. Laurence Orbuch, have bi-coastal endometriosis specialty practices focusing on excision of endometriosis. She practices in Los Angeles, California and New York City.
Endometriosis in Teenagers
Endometriosis is common in adolescents, especially in those who have a history of painful periods and pelvic pain. Do you know that 70% of teens with painful periods have endometriosis? Adolescents can experience cyclical or non-cyclical pain. Other symptoms include painful bowel movements, constipation, intestinal cramps, bladder pain. Nausea is often reported in teens with endometriosis. Teenagers who are already sexually active may report painful sex.
Both early, superficial endometriosis as well as advanced endometriosis are found in adolescents. Many articles have reported that 60% to 70% of teenagers who do not respond to medical treatment for painful periods have endometriosis at the time of laparoscopy.
Medical treatments do NOT cure or stop endometriosis. For some, endometriosis symptoms do improve with nonsteroidal anti-inflammatory (NSAIDs) and/or the birth control pill. However, it is important to remember that endometriosis progresses while the symptoms are masked.
The laparoscopic findings of endometriosis in adolescents or teenagers are different than an adult. In my practice, I understand that most lesions in teens or adolescents tend to be clear or red. Remember, when you look for a specialist, to find one who understands the difference in the visual appearance of teens with endometriosis. Excision of Endometriosis is the proper treatment of teens with endometriosis.
I offer support and compassion in dealing with adolescents. My husband and I have two daughters and relate beautifully to teenagers and adolescents, which is why many gynecologists refer their teen patients to our practice.
Tickets for the Endometriosis Summit, March 3, 2019 are on sale www.theendometriosissummit.com
The doorknob on the closed door looked 100 feet away though I was only a few feet from it.
I was sweating, pushing down tears, doing a very poor job at masking my anger, in pain and frustrated. I wanted out of that room and still the “doctor” crammed more and more mistruths into that tiny little space.
I use quotations because I knew more about endometriosis than this self-proclaimed endometriosis expert.
“It’s time for you to realize that all women over 40 with endometriosis require a hysterectomy for endometriosis and that’s the way it is”
“Did she just say that,” I thought. Am I being punked because I am sitting in one of the most well known endometriosis offices in the US and the doctor usually treating me just stepped out for a minute.
She continued by telling me I was retrograding into my belly and that was my source of pain so taking the uterus stops all that. My face got redder, because that is biologically impossible and the days of Sampson as the driver of endometriosis and pain are long over, My escape route, that doorknob, looked even farther away.
“But I have nerve damage from the hernia. I don’t want to risk a loss of sexual sensation. I do not want a hysterectomy. It is not good for my pelvic floor”
“It’ll be enough,” she snipped at me.
It will be enough, I was discussing my ability to sense anything sexually for the rest of my life and that’s how the doctor chose to speak to me. My entire career is providing a safe space for people with pelvic pain and this was how my concerns were being treated. I was standing there with an MRI, in hand, showing the nerve compression, a miscellaneous blob of sorts on top a pelvic nerve that could have been causing the pain. Yet, all that was being offered to me was ripping out of my uterus. I wanted to fix the compression. I wanted to make the decision about my fertility and my uterus myself, something I was robbed of when I had an ovary just taken during one of my surgeries. This was my body, my choice and I understood, probably more than any other patient, what that pelvic nerve was plus what surgery could and could do for it. Maybe operating on the uterus was not a cure, maybe it was a non permanent “fix” but that is the choice I wanted to make and it is my choice.I wanted respect.
It took everything I had that day to reach for that doorknob. I had been horrendously ill for months begging for help from these specialists. Going through that door, I exited a ten- year medical relationship with the only person, I thought, ever believed my pain, the senior partner at that practice. In return for standing up for my own uterus, for knowing that a hysterectomy does not treat endometriosis, only adenomyosis a condition inside the walls of the uterus, I was thrown in the garbage by my medical team like I was a nothing that didn’t matter. Months of pain continued. I sought new health care providers, some believed me, some could not find the source of my pain but realized who I was and managed to treat me with respect nonetheless. Any time I sat in a chair or walked, something someone commuting, watching TV, or say working needs to do, my pubic bone, hip flexor, groin, and labia felt like they were ripping. My belly button started to leak white fluid, yet I planked every day because that is my job as a physical therapist. I bloated and I bloated and I bloated. Most of all I cried.
Bad enough I had the disease, but the depths of darkness that ensued from being minimized and medically ridiculed by people I trusted caused me nearly unbearable bouts of depression. My alarm rang every morning. I got up, put one foot in front of the other and let time roll over me until bedtime. Which wasn’t long since I got into bed around 3pm every day. I was waking up at 5am to workout to try to stop the bloating, which didn’t work in case you’re wondering. Fibroids, SIBO, endometriosis and adhesions are a perfect storm for weight gain. With the pain and loss of self, I spent a lot of time in bed. Crying and wondering why, I, who am one of the leading voices in endometriosis in the United States, maybe the world, was being treated like dirt on the street both by my insurance company and by an endometriosis specialist who treated me for 10 years. I spoke up for my own health, then I was left to clean up the pieces created when my trust in medicine shattered- left to clean up the destruction of minimization all while wading through my own health issues. Arduous is an understatement.
I wasn’t silent though. I threw down one of the best speeches I ever gave at an Endometriosis March in Boston. I managed to protest for better standards of care in Washington DC. Almost every single Nook specialist offered to help me and then, allowing myself to trust just a little, I finally let one of them. He went the extra mile to provide care including getting a specialized general surgeon fancy one day privileges in another state just to surgically manage that nerve compression.
5.5 hours of surgery happened this summer, crazy stuff went down with my belly button, more endometriosis was found. Three nights in the hospital and I needed a walker for two days to make it to the bathroom when I got home. During recovery, I walked and I walked and I walked trying to regain my strength. Then because it’s me, dragged myself to a medical conference where I lectured. Almost 6 months out, I am still pushing myself in physical therapy and with exercises trying to recover. Part of my abdominal wall is still numb because care was so delayed, a hard truth for someone so obsessive about tennis.
I am a well-educated, white, cis-gendered, upper middle class woman working in endometriosis and all of this happened to me. I really was told to have a hysterectomy, that my sexual satisfaction didn’t matter, that occult hernias don’t exist, and that no one was going to have a baby with me anyway so I should just be done with it. I also, despite open lines of communications to any professional endometriosis advocate, pelvic pain specialist or endometriosis surgeon I wanted and therapy with medication, found myself in one of the darkest places I have ever been because I knew I was ill and all the team I depended on wanted to do was to forget and diminish me.
If this happened to me, what chance does anyone else out there have?
I still wake up in the middle of the night hearing my chart slam against the desk of the doctor as she pushed that hysterectomy on me. I still hear my doctor of 10 years, tell me that if I don’t apologize, Ill have to just learn to live with my pain as if he was holding my health ransom. I still remember the soul defying, heart wrenching pain of knowing if I did not vote with my feet, no one was ever going to help me. Sickening, a part of me still misses the good times over the years of working together. Trust shattered is a hard thing to get over. The whole ordeal broke my heart, or at least tried to. Goliaths are very visible but my little voice matters.
Don't misinterpret what I am saying. Hysterectomy has a role in the treatment of some pelvic pain disorders. Adenomyosis being one of them. But it has to be the patient's choice, not something shoved onto them.
In those three nights in the hospital, in between tears and massive doses of pain meds, I decided I had enough. I had enough of doctors being allowed to speak to patients like they don’t matter, to minimize their concerns, to overbearingly and unilaterally make decisions for them, to utilize outdated, lousy research and pharma funded information to come for my organs instead of providing me actual care. I’m over it. I am over how hard it is to have endometriosis, four excisions in and I still have disease, I have chronic nerve issues. I struggle with fatigue. I am over people thinking it’s only about surgery, or medication, or physical therapy-it takes a multi-disciplinary approach. I am over people thinking only flash and celebrity matters in awareness instead of delivering people actual treatment choices and real research for this disease.
In those moments I was inspired to bring you all together and discuss what to do about endometriosis- patients and practitioners all together in one room, hearing each other.
I call to order the Endometriosis Summit: Patient and Practitioner Town Meeting. It’s my brainchild that no other woman should endure what the last year, or actually what the last 15 years, of my life has been. I have endured it all.
No woman, girl, or person should miss out on school, career, social participation or motherhood because of pain and painful periods.
Join me March 3, 2019 www.theendometriosissummit.com
Facebook:Sallie Sarrel, Physical Therapist: Endometriosis and Pelvic Pain Management
Instagram and Twitter: drsalliept
Presenting EndoSummit2019's Lunch and learn at the Endometriosis Summit will be Dr. Jessica Drummond, DCN, CNS, PT, NBC-HWC Founder of the Integrative Women’s Health Institute, is passionate about empowering women who struggle with chronic pelvic pain conditions and hormonal imbalances, and female athletes, and supporting women’s health and wellness professionals globally.
She writes: As a functional nutritionist, once I have a clear diagnosis for my patient of endometriosis, the patient has decided for or against surgery, or I suspect endometriosis but it has yet to be diagnosed or ruled out, I take a very systematic approach to optimizing her digestive, immune, endocrine, nervous, and musculoskeletal physiologic systems with the goal of eliminating her pain, fatigue, and other symptoms.
We begin by optimizing her digestion. Without optimal digestive FUNCTION, it doesn’t matter what food plan a patient is on or what supplements she takes since none of the nutrition therapies can be well absorbed. Also, since gastrointestinal issues can overlap with endometriosis, making the pain worse, it’s important to relieve diarrhea, constipation, bloating, or other gastrointestinal symptoms. It’s important to optimize stomach acidity, digestive enzyme function, intestinal permeability, and to create a healthy gut microbiota environment in the colon, and eradicate small intestinal bacterial or fungal overgrowth (SIBO or SIFO.)
Then, we address immune function, with a focus on reducing inflammation, and eliminating exposure to food sensitivities or allergies (including celiac disease.) Optimizing the function of the intestinal barrier (aka healing “leaky gut”) is a key component to optimizing the functioning of the interface between the digestive and immune systems. Optimal immune function can not be restored until the intestinal epithelial barrier is healthy.
Often, women who have struggled with the pain and fatigue of endometriosis for a long time, have compromised mitochondrial function. Thus, antioxidant support, sleep support, and giving appropriate exercise and recovery recommendations is key.
Plus, if the brain is inflamed, or neurodegeneration begins due to inflammation, reduced blood flow or anemia, or dysglycemia are an issue, it’s important to support optimal brain function. This can be done with sleep strategies like getting enough daylight exposure (without sunglasses), turning off all blue light screens by 8pm, eating an antioxidant rich diet, and taking antioxidant supplements.
Finally, optimal hormone balance and support of the liver to appropriately metabolize estrogen is key to reducing the symptoms of endometriosis.
There are a number of food plans, nutrient supplements, and herbs that can support the optimal functioning of all of these systems, but first we need to understand exactly how this specific woman is depleted and what she is eating or doing that could be contributing to her inflammation, toxic load, leaky gut, or other systems compromises.
Thus, begin with an elimination diet. We have created a evidence-based pelvic pain relief assessment elimination diet for our clients that lightens the load on the digestive and immune systems, adds anti-inflammatory and mitochondria-supporting nutrients, is simple to cook, and tastes delicious.
Register to see Jessica at https://www.eventbrite.com/e/the-endometriosis-summit-patient-practitioner-town-meeting-tickets-52736747030?aff=ebdshpsearchautocomplete
Follow Jessica Drummond http://integrativewomenshealthinstitute.com
February 20, 2019
ENDOMETRIOSIS, HEALTH, MEDICAL CONFERENCE, NUTRITION, PATIENT ADVOCACY, PELVIC HEALTH, PELVIC PHYSICAL THERAPY
Heather Guidone is the Surgical Program Director for the Center for Endometriosis Care in Georgia. She will be the keynote speaker at The Endometriosis Summit. Heather Guidone has been a central figure in the endometriosis and the pelvic health community for nearly 30 years. She is internationally known as a subject matter expert on the disease and for her tireless work on behalf of the worldwide endometriosis community.She writes:
“The literature on endometriosis is extensive, though often contradictory or inadequate…” So wrote Olive & Schwartz1 25 years ago. Today, that still rings true, with the complexities of endometriosis, a multidimensional condition, remaining poorly elucidated. Affecting 176 million individuals worldwide from every demographic at staggering public costs, misinformation runs rampant and remains ubiquitous; inaccuracies continue to be shared in perpetuity from doctors to patients, parents to adolescents, and media to the public – some myths persisting even from the time of my own diagnosis more than 30 years ago. Girls today are experiencing many of the same obstacles present when my own journey began; despite the passage of nearly a century and extensive contrary research, adherence to outdated dogma, like Sampson or retrograde theory, continues to lead to ongoing ‘justifications’ for missed diagnoses and poor quality therapies.
Much of the discourse surrounding etiology is ardently debated, with the definitive cause(s) of endometriosis remaining elusive – as is a universal cure. Likewise, though endometriosis research may seem omnipresent, much of it is redundant in nature and lacking in translational benefit. The bulk of current efforts are now largely being directed towards pharmaceutical management even in unconfirmed diagnoses, which fails to provide meaningful answers or long-term solutions for the millions struggling. Moreover, where there was once a vacuum of information, the pendulum has now swung in the opposite direction, with society’s impressions of endometriosis now being largely informed by unattainable ‘celebrity’ experiences of specialists on demand, million dollar ad campaigns for drugs that are vastly unimproved over their predecessors, and influencers who champion stagnant treatments and long debunked myths. The result is a continuation of what we have experienced for generations: poor support and understanding of the patient experience, lack of unified advancement as a global community, and inequitable access to quality care.
The disease also remains largely linked to menstruation, despite affecting menstruators and non-menstruators alike, thus creating additional challenges for those outside the traditionally female-identified space. Correspondingly, although we have evolved over the past century, much of society’s derogatory view of menstruation, including within the political sphere (“…blood coming out of her wherever...”), remains virtually unchanged. As a result, menstrual pain and other symptoms of endometriosis, including and perhaps especially those of extrapelvic, non-menstrual presentations, are still far too often ignored or missed. It is critical to increase factual, timely disease awareness and articulate effective strategies to forge better pathways forward for the condition for all who are impacted. It is imperative that individuals know when, where and how to obtain help when symptoms first arise, and it is vital that the public, including but not limited to, legislators, gynecologic and women’s health institutions, hospital administrators, gynecologists and subspecialists not only become involved in the care and education of patients, but also ensure a seat at the table for them.
Despite the seemingly stark outlook, all is hardly lost. There are many physicians, researchers, citizen scientists, advocates and activists hard at work on these issues every day who continue to challenge the enduring confusion, inaccurate beliefs and negative views on endometriosis. The future is full of hope and promise. There has never been a more important time for your voice to be heard. Come be a part of progress at The Endometriosis Summit on March 3, 2019. Learn more: http://theendometriosissummit.com
1. Olive D, Barrie Schwartz L. Endometriosis. N Engl J Med 1993; 328:1759-1769.